Subcommittee Hearing Rare Diseases: Expediting Treatments for Patients

Subcommittee on Children and Families Date: Wednesday, October 3, 2018 Time: 02:30 PM Location: 430 Dirksen Senate Office Building

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  1. Mark Dant
    EveryLife Foundation for Rare Diseases
    Louisville, KY
  2. Marc Patterson, MD
    Professor of Neurology
    Pediatrics, and Medical Genetics, Mayo Clinic
    Rochester, MN
  3. Michael Strupp, MD
    Professor of Neurology
    University of Munich
    Munich, Germany
  4. Lincoln Tsang
    Arnold, Porter, Kaye, Scholer LLP
    London, United Kingdom
  5. Mallory Factor
    Founder and CEO
    IntraBio, Inc.
    Oxford, United Kingdom

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Those in need of accommodations, including closed captioning for webcast hearings, should contact the Committee at 202-224-5375 or So as to best enable staff to make arrangements, please call or email at least 3 business days in advance of the hearing.