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Senate Committee on Health, Education, Labor, and Pensions

Treating Rare and Neglected Pediatric Diseases: Promoting the Development of New Treatments and Cures

Time: 10:00am
Location: SD-430

Panel I

  • Dr. Jesse Goodman

    Chief Scientist
    U.S. Food and Drug Administration
    Silver Spring, MD
  • Dr. Alan Guttmacher

    Acting Director
    National Institute of Child Health and Human Development
    Bethesda, MD

Panel II

  • Mr. Alex Silver

    Jackson Gabriel Silver Foundation
    New York, NY
  • Mr. John F. Crowley

    President and CEO
    Amicus Therapeutics
    Cranbury, NJ
  • Ms. Diane Edquist Dorman

    Vice President for Public Policy
    National Organization for Rare Disorders
    Washington, DC
  • Ms. Suerie Moon

    Board Member
    Doctors Without Borders USA
    New York, NY
  • Dr. Daniel Frattarelli

    Chair of Committee on Drugs
    American Academy of Pediatrics
    Dearborn, MI

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